Patient activation in schizophrenia: insights from stories of illness and recovery.

Salyers MP, Matthias MS, Sidenbender S, Green A. Patient activation in schizophrenia: insights from stories of illness and recovery. Administration and policy in mental health. 2013 Sep 1; 40(5):419-27.

Related HSR&D Project(s)

• CDA 10-034 – Identifying Strategies to Improve Communication in Chronic Pain Care
• IIR 08-324 – Mechanisms of Patient Activation and Self-Management in Schizophrenia

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Abstract:

Using a mixed-methods approach, we sought a deeper understanding of patient activation in 46 participants with schizophrenia. We qualitatively examined narratives for themes related to patient activation and divided the sample based on the mental health version of the patient activation measure. Participants high in patient activation described acceptance, control over illness, a wide range of activities that help them, and highlighted collaborative treatment experiences. The groups did not differ in understanding the cause of illness, what makes symptoms worse, or things they were proud of. Active management of schizophrenia mirrors physical health activation in several ways.