Engaging Veterans and their caregivers in the design, conduct and dissemination of VA research has emerged as a powerful way to improve research and to build Veterans’ trust in VA. Since 2015 the national Veteran Engagement Workgroup (VEW) has worked to foster meaningful collaborations between Veterans and VA researchers. The goal of the group is to ensure that Veterans help shape VA research and make it more Veteran centric. Below is a summary of the group’s progress as well as key resources developed by VEW to improve the VA research infrastructure.
What is Veteran Engagement?
Veteran Engagement (VE) involves active and meaningful collaboration between Veterans and researchers across all stages of the research process, where Veterans’ experiences, values, and expertise guide research decision making. This concept of partnered research is in alignment with the goals of a learning health system which turns the experience of caring for patients into insights and improves and accelerates the uptake of research innovations and discoveries in clinical practice.
There are many ways that VA researchers can partner with Veterans and their caregivers. This spectrum of VE in research varies in both purpose and intensity. Researchers could consult with Veteran Engagement Groups (VEGs) at a Center of Innovation (COIN) or Consortia of Research (CORE), create their own project-based VEG, or include Veterans on their research team. Here are some resources to help navigate this process:
History of VE in HSRD
The VA strives to be a Veteran-centered health care system, which includes ensuring that VA-funded research reflects the needs and perspectives of Veterans. The concept of “patient-centered research” goes back decades, but since 2015 the Health Services Research and Development (HSR&D) division of the Office of Research and Development (ORD) has expanded efforts to include the engagement of Veterans and their caregivers in the research process.
The increased academic interest in patient engagement in the health research process led HSR&D to establish a national workgroup on Veteran Engagement (VEW) in 2015. This workgroup is comprised of investigators, Co-investigators, Veteran Engagement Group (VEG) liaisons, Veterans, and caregivers representing HSR&D nationally.
VEW has outlined approaches for local Veteran engagement initiatives and developed goals for promoting Veteran engagement in research nationally. In 2015 VEW completed an environmental scan of the then current progress in local Veteran engagement efforts, VE at the project level, and research in Health Experience Research (HER). This was coupled with an HSR&D specific VE conceptual model (Veteran Engagement in Health Services Research: a Conceptual Model | SpringerLink).
See Engaging Veterans in Research and
Veteran and Caregive Engagement Report.
VEW and HSR&D efforts led to a substantial growth in VE activities. VE Plans are now required in HSR&D research proposals and Veteran Engagement Groups (VEGs) are a ubiquitous part of Centers of Innovation (COIN) and COnsortia of Research (CORE) activities.
Veteran Engagement in Practice
VA’s scale of work has created opportunities to contribute to the science of engagement—that is, the systematic study of methods for and outcomes of engagement to inform high-quality, patient-centered health research. Much of this burgeoning knowledge about the benefits, frameworks, and models for how to engage Veterans is based on more applied and experiential descriptions of engagement. Recent HSR&D VE SWIFT funding will support research to expand and examine the effectiveness of different approaches to encourage VE in VA research.
Here are some activities the VEW is involved in:
- We focus on educating the HSR&D research community about VE through a series of CyberSeminars, which are ongoing.
- We work to ensure that local Veteran Engagement groups (VEGs) at the COIN and CORE level exist, are active and supported.
- We help organize VE activities (including VE posters and VE Forums) at the annual HSR&D National Meeting
- The VEW meets virtually every 2 months. Contact Susan Zickmund if you would like to join the national Veteran Engagement Workgroup [Susan.Zickmund@va.gov]
Recent VE Activities:
Veteran participants in 2023 VA HSR&D National Meeting
- HSR&D Research Priorities
- The Elizabeth Dole Center of Excellence for Veteran and Caregiver Research
- RAND Epstein Family Veterans Policy Research Institute | RAND
- This special supplement of JGIM on patient and Veteran engagement in research is funded jointly by PCORI and VA HSR&D with the goal of sharing lessons learned from partnered research with the broader field of health services research and health care delivery science researchers. Journal of General Internal Medicine | Volume 37, supplement issue 1 (springer.com)
- Cope E.L., McTigue K.M., et al. Stakeholder engagement infrastructure to support multicenter research networks: Advances from the clinical research networks participating in PCORnet. Learn Health Systems
. 2022 May 12;7(1):e10313. doi: 10.1002/lrh2.10313. eCollection 2023 Jan.
- Brown, K. M., Walker, L., & Kaminstein, D. S. (2020). Building an Effective and Empowered Community Advisory Board for Veterans. Journal of Humanistic Psychology, 0(0). https://doi.org/10.1177/0022167820976037
- M.A. Chavez, K. River Blevins, et al.
The Future of Veteran Community Engagement:Perspectives on Engaging Veterans and Other Stakeholders in Research Agenda Setting. Journal of Veteran Studies 2022, Volume: 8 Issue: 2. DOI: 10.21061/jvs.v8i2.360