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Printed and Web-Based Education For Caregivers Of Stroke Survivors

Uphold CR, Findley KE, Freytes IM, Knauff L, Wing KL, Rodriguez W. Printed and Web-Based Education For Caregivers Of Stroke Survivors. Poster session presented at: American Geriatrics Society Annual Meeting; 2010 May 14; Orlando, FL.


ABSTRACT BODY: Purpose: The purpose was to implement and evaluate culturally sensitive, useable and appropriate printed and web-based education for professional and informal caregivers of stroke survivors. Methods: This project is being conducted at the VA Medical Centers in Gainesville, Florida, San Juan, Puerto Rico and Milwaukee, Wisconsin. We analyzed currently available stroke Web sites and used data from our previously conducted caregiver research studies to identify informational needs of stroke caregiver. We developed 43 English- and Spanish-language fact sheets on stroke and stroke caregiving topics using guidelines for developing culturally relevant educational materials for a low-literate audience. We used the Flesch-Kincaid reading guide level tool to determine reading level. The fact sheets are available in printed and web-based format. We conducted three focus groups with providers in Gainesville (n = 10), Milwaukee (n = 12), and San Juan (n = 10) to get feedback on the draft stroke caregiver Web site. Results: Providers voiced primarily positive statements about the printed and online education. Feedback was that the fact-sheets were attractive, easy-to-read, brief, and well organized. Feedback about the Web site was that it was easy to navigate and looked very professional. Suggestions for improvement focused on layout and formatting of the Web site and including more content on shoulder problems, transferring patients, and behavioral problems. The providers stated that most of the caregivers do not have computers and will need printed educational materials. Conclusions: Printed and web-based education for professional and informal caregivers is viewed as a positive strategy to improve the outcomes of family and friends who care for stroke survivors.

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