HSR&D Citation Abstract
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Internet-Based Survivorship Care Plans for Adult Survivors of Childhood Cancer: A Pilot Study.
Szalda D, Schwartz L, Schapira MM, Jacobs L, Kim E, Vachani C, Metz J, Hill-Kayser C. Internet-Based Survivorship Care Plans for Adult Survivors of Childhood Cancer: A Pilot Study. Journal of adolescent and young adult oncology. 2016 Dec 1; 5(4):351-354.
Survivorship care plans (SCPs) provide health information to survivors and providers. An existing internet-based SCP generator was adapted to incorporate guidelines for adult survivors of pediatric leukemia and lymphoma. Survivors created an SCP online and completed a survey. Survivors (N? = 30) took an average of 10 minutes to complete the SCP. The majority (95%) found the platform easy to use, would recommend it to others (85%), and intended to share SCP with their healthcare team (90%). Thus, a patient-generated internet-based SCP for adult survivors of childhood cancer may be a feasible tool to improve consistency of information for survivors and their providers.